Meet The Girl Whose Body Is Turning Into Stone, what would you do if you were the one?



At only 23 years of age, Carli Henrotay's mobility is already severely restricted: she cannot raise her arms above her head and uses a wheelchair to move around; while its jaw opens only a few millimeters. Carli has
Fibrodysplasia Ossificans Progressiva (FOP), which causes muscles and connective tissues to slowly turn into bone, causing a second skeleton to grow. people around the world who are known to have the condition
Carli said in an interview: "FOP is one in every two million illnesses, although there is evidence that it is seen a little more than that, but the published number is one in two million and there are about 800 known cases worldwide. correct now.
"FOP mainly affects me in two different places; my jaw is blocked and I have less than 2 mm of opening, which makes it more difficult for me to eat or speak and to project my voice.
My shoulders and neck are also blocked, preventing me from combing or driving. And my hip is also locked, so I limp or use other mobility aids just because I can't walk that long. FOP causes a lot of pain.



I never know how to answer the question on a scale of 1 to 10, what is your pain? because | Live every day and every moment of pain. I am lucky to have such pain tolerance.
“Before her diagnosis, Carli was an active girl; His happy place was a swimming pool and he loved nothing more than running outside, whether playing football or T-ball. However, all that changed when the doctors told Carli's parents that their daughter was suffering from a rare and progressive illness.


Cari said: "I was diagnosed with FOP at half past five, so I was fortunate to have this normal childhood. But at the same time, I don't remember life without FOP, so I have all the memories of a normal childhood but without remembering what it was
If I had probably been diagnosed even two years later, I would have had more memory living without FOP, but I feel very fortunate to have had this normal childhood, but I am not embarrassed not to live without . in 2001 at the back of a bar stool and I had a lot of swelling and it hurt a lot. "

Post a Comment

0 Comments